Wednesday, January 27, 2016

Where I have been and where I am going next.

      Not sure what I am doing so let's hope this works and people can find this. A friend of ours suggested my wife write something for our motorcycle club's newsletter keeping everyone up on what was going on with me. When she told me this she used the word blog so I decided to do this. This blog is primarily for family and friends who have expressed concern for me but feel free to share this with anyone you think may be interested.
   
      First off I have a cancer called Multiple Myeloma. It is a cancer of the blood and bone. There is no cure at this time but it is a highly treatable cancer so I expect to be around a while. This all started sometime in about April or May. I was having some trouble with my appetite and as a result began losing weight. Nothing smelled or tasted right to me so I was gradually eating less and less. This all came to a head in early July. I went to my Doctor and he ordered some blood work. Kathy and I went to a 4th of July picnic at a friends home. By this time I had gone from 325 lbs to about 250 lbs. That day I couldn't eat anything. On sunday the 5th, I got a call from my Dr. Being it was Sunday I knew it wasn't good. He told me get to the hospital so I did. They didn't know what was wrong with me but they knew I was anemic. They admitted me and gave me several units of blood. In all it would eventually total 9 units. They did testing and on I believe Monday morning a lady came to my room and told me what they thought I had which was Multiple Myeloma Cancer. She explained to me what it was and how it could be treated bur said I needed a bone marrow biopsy to confirm it so the next day I had the biopsy and the diagnosis was confirmed. Since then I have been taking lots of pills, had about 6 or 7 plasmapheresis treatments, about 7 or 8 cycles of Chemo and just yesterday (1/26/2016) had stem cells collected for a stem cell transplant scheduled for 2/15/2016.

     So in a nut shell that brings us up to where I am now. There won't be a lot added to this until I go to Christiana Hospital to have my stem cell transplant on 2/15. Posts on here will be both from myself and from my wife. I will be in the hospital 3 to 4 weeks. Due to the high dose chemo and other drugs they will be pumping into me there will be days I will be too sick, tired or both to post so Kathy will post both for me and for what she has to go through on this journey. Just don't read too much into it when she or myself say I am having a bad day. Part of the process is I have to get worse, mostly from the chemo, before I can get better. We will try and between the two of us should be able to post daily. Often we will both post on the same day as what she will be going through will be different than what I will be going through. As I learn to do this I will post photos from time to time. Anyone is welcome to follow and respond to a post anytime you want.

     Guess that's it for tonight. Now let's see if I can get this out so people can see it. If you were able to read this please post a short message to let me know this is out there and people are getting it. A simple "got it" will suffice however post whatever is on your mind. If you read this far then thank you and keep checking back.

Goodnight!
Glenn




   

17 comments:

  1. Got it. Will follow your journey.....good and bad. Ruth and gary

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  2. That was a great start to a blog to follow your fight with MMC. You have been a fighter since I have know you and if anyone can get ahead of this its you. You will be in my prayers everyday during this journey.

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    1. Thanks Jose. This will also give me something to do while in the hospital.

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    2. Thanks Jose. This will also give me something to do while in the hospital.

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  3. Got it and you know I'll be following it. Love you.

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  4. Thanks. Looks like I need to figure out how to edit.

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  5. Got it and we will keep you and Kathy in our prayers. Keep up the battle victory will be yours. Sheila

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    1. Thanks. I am staring to figure out a few things but still learning. Won't be a lot posted until I go for the transplant but we will keep everyone up to date with daily postings once I am admitted.

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  6. I got it,I hope you know you have been on my mind. I hate thinking about it, worrying about it and some times I pretend it's just not happening but truth is, I love you sooo much! The thought of anything being wrong with you, scares me. I love you and know it's a highly treatable cancer but have been shrinking away from the thought of you being anything but perfectly well.

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    1. I know you have and your Mom and I think of you all every day. Try not to worry about me as I am in good hands. About Blogger not letting you post a 2nd reply, I still don't know why but I received it but it just said "This comment has been removed by the author". Give it another try. Love and miss you and try not to worry.

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    2. Seems to be working again, I don't know what happened. Weird. Can't wait to visit this spring/summer!

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    3. Seems to be working again, I don't know what happened. Weird. Can't wait to visit this spring/summer!

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    4. Great! I am going to delete those that did not come through. Can't wait until you all are here too. I should be doing much better by then.

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  7. Glad you decided to do this blog. I know you are going through a lot and I am sending lots of love and prayers your way. It'll be a process that I can't know what you are going through physically and mentally. I do know you have plenty of love and support and that is the best medicine. Anyway 350lbs! This is a heck of a way to lose weight. Ha ha. Love to you and Kathy. Be strong.

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    1. I replied to this when you first posted it but I haven't seen that reply since.Thanks for the love and prayers. From what I have read I am going to be "as sick as I have ever been" but I am also going to get much better, it's all part of the process. I thought I was going to have an easy two plus weeks befor I go but I had to rearrange some Doctor appointments plus I have to get bloodwork for those appointments plus heart and lung tests on Wednesday a week from today. To make things worse I have been having pain from the Neupogen and Mozobil they gave me to make my bone marrow release stem cells. It makes it difficult for me to sleep. Most nights I either start out in the bed but have to get up and go sleep in the chair or vise versa. Fortunately they got enough stem cells the first time around so I didn't have to hang around another day. Keep checking back. I might write a little more today and again next week when I start all the Doctor appointments etc. Love you!

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  8. Got it. Wish there was something we could do to make this journey easier for you and Kathy.
    Bobbi and Lenny

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